Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Post COVID .

Frequently Asked Questions

Find answers to the questions we get asked the most about OMFCA.

General Questions

OMFCA funds research projects at our five established Collaborative Research Centers (CRC) at Stanford, the Harvard Affiliated Hospitals, Uppsala University, The Université de Montréal, and the University of Melbourne.

We are not typically involved in the research process. Our role is to ensure that each CRC has the financial resources required to conduct critical research into ME/CFS and related chronic, complex diseases.

Each CRC operates independently and recruits research participants from clinicians that they collaborate with locally. CRCs are not able to respond to inquiries from the general public. Additionally, OMFCA cannot introduce constituents to researchers.

When OMFCA seeks participants in any data gathering research project, we will email those requests to our entire community. If you don’t already receive email updates from OMFCA, you can sign up here.

OMFCA cannot provide personalized medical recommendations for doctors. However, we can offer the following helpful resources and will continue to share reliable, verified information, as it is made available. Our goal is to empower you to take care of your health today, while we search for answers for tomorrow:

Visit OMFCA’s resource center to find a list of helpful information for caregivers and people with ME/CFS and related diseases, including handouts to share with your doctor.

Share the US ME/CFS Clinician Coalition Diagnostic Guidelines with your medical provider.

Visit the U.S. ME/CFS Clinician Coalition’s website: https://mecfscliniciancoalition.org.

The website includes resources that may assist with diagnosis of ME/CFS and insight into clinical management, opportunities for continued medical education (CME) courses on ME/CFS, guidance on disability or school/work accommodations, and more.

OMFCA is not authorized to give medical advice or comment on personal medical concerns. Because we are a fundraising organization, our job is to ensure that the five OMF & OMFCA funded Collaborative Research Centers have enough resources to continue their work to end ME/CFS and related diseases with urgency. However, we recommend taking a look at the following resources, which may help navigate the complex world of ME/CFS and related chronic complex diseases:

Visit OMFCA’s resource center to find a list of helpful information for caregivers and people with ME/CFS and related diseases, including handouts to share with your doctor.

Print the US ME/CFS Clinician Coalition Diagnostic Guidelines to share with your medical provider.

Visit the U.S. ME/CFS Clinician Coalition’s website: https://mecfscliniciancoalition.org.

The website includes resources that may assist with the diagnosis of ME/CFS and insight into clinical management, opportunities for continued medical education (CME) courses on ME/CFS, guidance on disability or school/work accommodations, and more.

OMFCA does not offer patient services and is not directly involved in patient care. As a fundraising organization, our role is to ensure that the five OMF-funded Collaborative Research Centers, (CRC)s have the resources necessary to continue our mission to end ME/CFS and related chronic complex diseases with urgency.

However, we can offer the following helpful resources and will continue to share reliable, verified information as it is made available. Our goal is to empower you to take care of your health today, while we search for answers for tomorrow.

Visit OMFCA’s resource center to find a list of helpful information for caregivers and people with ME/CFS and related diseases, including handouts to share with your doctor.

Print the US ME/CFS Clinician Coalition Diagnostic Guidelines to share with your medical provider.

Visit the U.S. ME/CFS Clinician Coalition’s website: https://mecfscliniciancoalition.org.

The website includes resources that may assist with the diagnosis of ME/CFS and insight into clinical management, opportunities for continued medical education (CME) courses on ME/CFS, guidance on disability or school/work accommodations, and more.

OMFCA does not currently have a specific timeline for when diagnostic tests, treatments, or a cure may become available. As an organization that values transparency, we will continue to provide verified updates from our funded research centers as soon as they are available.

If you’re not already subscribed, you can sign up for OMFCA’s email updates here. We will send regular correspondence about the latest news from our research centers directly to your inbox.

Due to the high demand of requests, OMFCA cannot promote personal fundraisers for medical expenses at this time.

OMFCA is not authorized to review or comment on personal medical information. We are not directly involved in the research process. Our role is to ensure that each Collaborative Research Center has the financial resources required to run OMF & OMFCA funded studies.

If OMFCA seeks participants in any data gathering research project, we will email those requests to our database. If you don’t already receive email updates from us, you can sign up here.

Please email info@omfcanada.ngo with your name and preferred contact information. We will forward your information, and a team member will get in touch if they are interested.

There is anecdotal evidence that mold is a possible trigger for ME/CFS.

OMF & OMFCA is funding biomolecular research and diagnostic and treatment options for ME/CFS and related chronic complex diseases. While we hope to identify the many triggers for ME/CFS, we must first identify a biomarker or biological molecule found in blood, other body fluids, or tissues that is a sign of the disease. A biomarker may be used to see how well the body responds to a treatment for a disease or condition and allows for conclusive diagnosis.

 To learn about OMFCA funded research projects, please click here.

We cannot forward information to the researchers or share contact information.

Currently, OMFCA is using volunteers for administrative functions on a seasonal basis. Please use the attached form, and we will contact you in advance of opportunities.

Questions Regarding Donations to OMF

Thank you for your interest in supporting our mission! You can send a check via mail by making the check payable to “Open Medicine Foundation Canada.”

Open Medicine Foundation Canada
2987 Baynes Road
Victoria, British Columbia V8N 1Y4
Canada

For more information about different ways to donate to our mission, please click here.

Thank you for joining us in our mission to fast-track critical research into Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) by starting your own fundraiser!

We recommend taking a look at our digital fundraising toolkit. The toolkit contains simple, easy-to-use guides for launching fundraisers on Facebook and CrowdChange, or in-person events. It includes downloadable templates to help spread the word on social media or email.